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<3 Mattia <3

2/8/2019

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Ci sono sere dove,
dopo una giornata di corri qua... corri la..
finalmente arriva quel momento in cui puoi appoggiare i piedi su un bel pouf e magari guardare un pochino la tv leggere un libro o semplicemente rilassarti.
Noi invece in quel preciso momento semplicemente con uno sguardo capiamo che è il momento giusto per scambiare qualche chiacchiera con qualche genitore "speciale"...
Tutte le famiglie che abbiamo conosciuto e sostenuto sono famiglie che non hanno mai chiesto nulla ,
siamo stati sempre noi ad insistere ,perché a volte a non "farcela " ci si sente inutili ,si prova un senso di sconfitta e SOPRATUTTO ci si sente "SOLI".
Essendoci passati in prima persona capiamo al volo quando per una mamma o un papà è un momento no... E quindi come si può stare con le mani in mano....
E allora sapete cosa abbiamo pensato di fare stasera?
Vi ricordate il nostro super cucciolo Mattia Maffei?
Un dolcissimo eroe affetto da 2 malattie Genetiche rare abbinate....
Sindrome di Angelman e Sindrome Ring14
Abbiamo pensato di ripetere la missione dell'anno scorso ( sostenere la spesa per un infermiera che dara' una mano a mamma e papà 20 ore mensili con la durata di 6 mesi)
20 ore pagate al mese

Ed è grazie a voi che questo è possibile !!!!!
grazie grazie grazie
❤️
There are evenings where,
after all day running..
When finally comes that moment when you can put your feet on the sofa and maybe watch a little TV read a book or just relax.
We understand that it is the right moment to exchange a few chats with some "special" parents ...
All the families we have known and supported are families who have never asked for anything,
we were always the ones who insisted,
because sometimes we do not "make it" we feel useless, we feel a sense of defeat and ABOVE it feels "ALONE".
Having passed in first person we understand when it is a time not for some family,
and then how do we stand with our hands?
So you know what we thought we were doing today?
Do you remember our super puppy Mattia Maffei?
Our hero suffers from 2 combined rare genetic diseases
Angelman Syndrome and Ring14 Syndrome
We decided to repeat the mission of last year (to support the expense for a nurse who will give a hand to mom and dad for 6 months)
The family will have 20 hours paid per month
And it is thanks to you to make this possible !!!!!
thanks thanks thanks
❤️

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