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MATTIA HA BISOGNO DI TUTTI NOI ...MATTIA NEED HELP

10/6/2017

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Con onore e orgoglio vi presentiamo Mattia, lui è la nostra prossima missione💗
È affetto da 2 malattie rare genetiche abbinate, la Sindrome di Angelman e la sindrome Ring 14.
Questo lo rende l'unico caso al mondo. Ha bisogno di una presenza 24 ore su 24
Di qualcuno che stia con lui e lo assista.
Oggi i suoi genitori, residenti a Collegno, sono un pò stremati...forse tanto, non ce la fanno più a sostenere il ritmo...tra il lavoro e le cure che gli dedicano sommati al poco sonno hanno bisogno di aiuto.
Hanno scritto e denunciato la cosa a tutti gli enti competenti ,l'unica cosa che sono riusciti ad ottenere dalla Sanità, sono state 12/15 ore di assistenza a settimana.
Come potete immaginare, questo non basta a far si che i suoi genitori possano lavorare e stare con lui senza essere troppo stanchi.
Ormai si vedono x darsi le consegne, il papà lavora di giorno e la mamma dal pomeriggio fino alle ore 1 / 2 del mattino.
Mattia ha bisogno di un aiuto e i suoi genitori di un po di serenità 💗
⚡⚡FORZA RAGAZZI⚡⚡

With honor and pride we present Mattia, he is our next mission💗
It is suffering from 2 rare genetically matched diseases, Angelman's Syndrome and Ring 14 syndrome.
This makes it the only case in the world. It needs a 24-hour assistence
Someone who is with him and help him
Today his parents, who are living in Collegno, are a bit exhausted ... maybe so much, they can not support the rhythm ... between work and the care that they spend together with the little sleep they need help.
They wrote and denounced the matter to all the competent bodies, the only thing they could get from Heath care is, 12/15 hours of assistance per week.
As you can imagine, this is not enough to let his parents work and stay with him without being too tired.
By now they see just to giving their deliveries, my dad works day and night from the afternoon until 1pm in the morning.
Mattia needs help and her parents a bit of serenity
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